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Your stories
Views and experiences
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Beki is a PhD student from the West Midlands. She has several health conditions including severe asthma and Ehlers-Danlos syndrome (EDS). EDS is a rare inherited condition that affects connective tissue. Last May, Beki set herself a fundraising challenge to complete 180,000 steps to raise money to mark World Asthma Day and EDS Awareness Month.
Bethany is one of our volunteer ambassadors. She was motivated to join us after she found out she had congenital pulmonary airway malformation (CPAM) found the help and advice she got from our health advice and specialist nurses really helpful. Last year, after her health deteriorated, she found herself turning again to our nurses for support. Here she tells us all about it.
Lotus always had mild asthma until six years ago. Then her symptoms started getting progressively worse, until by 2023 she was so breathless that she couldn’t work full time anymore. She was diagnosed with a rare disease called Pulmonary alveolar proteinosis and now uses oxygen to help her breathe.
Joey from Wiltshire has lived with severe asthma since she was a child. She’s fundraising for Asthma + Lung UK in memory of her friend, Becky, who sadly passed away from a lung condition in August 2023.
Have you got a story to tell? It could be about your – or someone you know - experience of living with a lung condition, a memory of a loved one, or a fun fundraising activity.
Whatever it is , we’d love to hear from you.
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Your Stories
Beki is a PhD student from the West Midlands. She has several health conditions including severe asthma and Ehlers-Danlos syndrome (EDS). EDS is a rare inherited condition that affects connective tissue. Last May, Beki set herself a fundraising challenge to complete 180,000 steps to raise money to mark World Asthma Day and EDS Awareness Month.
Bethany is one of our volunteer ambassadors. She was motivated to join us after she found out she had congenital pulmonary airway malformation (CPAM) found the help and advice she got from our health advice and specialist nurses really helpful. Last year, after her health deteriorated, she found herself turning again to our nurses for support. Here she tells us all about it.
Lotus always had mild asthma until six years ago. Then her symptoms started getting progressively worse, until by 2023 she was so breathless that she couldn’t work full time anymore. She was diagnosed with a rare disease called Pulmonary alveolar proteinosis and now uses oxygen to help her breathe.
Joey from Wiltshire has lived with severe asthma since she was a child. She’s fundraising for Asthma + Lung UK in memory of her friend, Becky, who sadly passed away from a lung condition in August 2023.
When Matt returned back from a trip from Berlin in early 2008, he became really unwell. Initially he was diagnosed with tonsillitis, then flu which escalated into an induced coma. Here he tells us about his experience and how it’s led him to take action to protect others.
Richard from Lancashire ran the London Marathon 2024 for Asthma + Lung UK and he’ll be running it again this year. He had to build his endurance up gradually because he only has one lung, meaning he has less oxygen capacity than other runners, which can affect his ability to exercise. Read more about how he keeps active with his condition.
Chloe was diagnosed with asthma as a child. As she got older, her symptoms had completely disappeared. But when she started university, this changed. Here she tells us how getting active has helped her manage her asthma - and changed her life.
Our supporter, 44-year-old Kevin Wood from East Lothian ran both the London Marathon and Edinburgh Marathon earlier this year. He’s had asthma since he was a child. Here he tells us how running has given him opportunities to do things he never thought possible.
Our amazing supporters never fail to impress us with their creativity and passion. This year we’ve had some truly unique fundraising, alongside the failsafe classics. Here are just a few of their stories.
Our amazing supporters at Poplar HARCA organised a unique challenge to raise money for Asthma + Lung UK. Here Alice from our community fundraising team tells us all about it.
In May 2024, our supporter Amy sadly lost her dad after a fall which caused his lung to collapse. He also had COPD. Here she tells us how fundraising for Asthma + Lung UK in his memory gave her a sense of purpose.
Liam’s uncle, Keith, sadly passed away from Pulmonary Fibrosis in January 2023. Liam ran the Manchester 10k earlier this year in Keith’s memory and fundraised for Asthma + Lung UK.
Our supporter Gemma ran the London Marathon this year for Asthma + Lung UK. She ran in memory of her brother, Grant, who passed away from an asthma attack. She ran alongside Grant’s lifelong friends, Kim and Andy.
Our incredible supporter Natalie took on the mighty London to Paris cycling challenge to raise awareness of just how serious asthma can be. Here she tells us all about it.
Sam Phillips from Newport ran the Cardiff Half Marathon this year in memory of her beloved son, Luke. He tragically lost his life to a sudden asthma attack in 2019, when he was just 19 years old.
Our supporter Mia ran the London Marathon this year for Asthma + Lung UK in memory of her brother, Matthew, who passed away from an asthma attack. Here she tells us why she chose to take on the challenge.
Our amazing supporter, Gerard, sadly lost his wife Margaret to bronchiectasis in October 2023. This year he took on a special challenge to remember her and raise awareness of this condition. Here he tells us all about the challenge and what it meant to him.
Elina was only 26 when she was diagnosed with emphysema, a type of chronic obstructive pulmonary disease (COPD). On World COPD Day, here she shares her story to help raise awareness and encourage people to seek advice if they have symptoms.
Earlier this year. Grace , who is part of our Research + Innovation team, challenged herself to walk 100 miles in March to raise money for Asthma + Lung UK. After signing up, she had the surprising realisation that she was one of the one in five people in the UK who will be diagnosed with a lung condition in their lifetime. Here she tells us about her staggering diagnosis of tuberculosis and her fundraising journey.
Our supporter, Clarrie, took on a cycling challenge for Asthma + Lung UK. Here she tells why she took part in the challenge and how much of a difference it’s made to her wellbeing.
Our supporter Lesley ran for Team Breathe in the London Landmarks Half Marathon this year. Here she tells us about her journey to running half marathons and why supporting Asthma + Lung UK is so important to her and her family.
Our supporter, Ricky ran the Great North Run for us this year in memory of his close friend Stevie. Here he tells us why it was so important for him and how he’s helping fight for everyone’s right to breathe.
Our supporter, Rebecca took part in our Hula Hoop Challenge this year. She hula hooped for 15 minutes every day for 30 days in May. She raised over £200 to support our vital work fighting for lung health. Here she tells us how the memory of dad, Nick inspired her to take on the challenge, and how it helped improve her fitness.
Laura Gilmore, a 37-year-old Advanced Nurse Practitioner (ANP) from Prestwick near Glasgow, will be tackling the iconic TSC London Marathon for Asthma + Lung UK Scotland for the second time. She tells us how running helped managed her grief after losing her dad to Idiopathic Pulmonary Fibrosis, and why she’s fundraising in his memory.
In June 2020, Philomeena’s mum, Rita, was diagnosed with Stage 4 lung cancer and she wondered how much time she had left. Now, in 2022, Philomeena shares the story of how she has cared for her beloved mother remotely, and how Rita is beating lung cancer.
Speaking on World COPD Day, Katy Brown, 65, from Bristol, reveals how she struggled to get a COPD diagnosis during the pandemic, the challenges she faced and what has helped her through.
After being struck down suddenly by pneumonia at 33 on her son’s third birthday, our supporter, Jardine ended up on life support. Here she tells us why she’s raising awareness this World Pneumonia Day, and why it’s so important.
Andy, aged 37, was diagnosed with pulmonary fibrosis (PF) in 2013. He is currently waiting for a lung transplant. Here he asks our researcher, Simon a few questions about his research into PF and how it could make a difference to others with the condition.
Anita has first-hand experience of the impact stress can have on asthma, as her dad collapsed and died from a stress-induced asthma attack when she was a teenager. Anita, 49, who has asthma herself, changed her life to stop history repeating itself.
Living with a long-term lung condition can affect many aspects of your life. You’ll have physical symptoms, like getting out of breath and feeling tired. Lung conditions can also affect your mood, how you feel, and your ability to cope with daily life.
This World Mental Health Day, we’ve pulled together some tips to help you to look after your mental health right now.
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Every five minutes someone dies from a lung condition.
Yet only 2% of public funding for medical research goes to lung health. How can something so vital be so underfunded?
Together we can change this.
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After experiencing devastating loss, losing his wife, mother, and brother to mesothelioma, 76-year-old Ray started fundraising for Asthma + Lung UK. Here, he tells us his story about how doing a challenge has helped him to cope with his loss, and how he’s fundraised over £13,300 in aid of mesothelioma support and research.